Response to “Against patient involvement in clinical research”

Patient involvement in clinical research: why, when, and how

The development of a patient-centered approach to medicine is gradually allowing more patients to be involved in their own medical decisions. However, this change is not happening at the same rate in clinical research, where research generally continues to be carried out on patients, but not with patients. This work describes the why, when, and how of more active patient participation in the re...

Patient involvement in clinical research: a qualitative evaluation of impact

Context The RESTORE programme comprises a randomised controlled trial, three pilot trials, a cohort study, qualitative studies and systematic reviews. Since 2010, the patient panel (PEP-R), has inputted into RESTORE. Seventeen patients have been involved in total, 8 were recruited at the time of the evaluation. Through facilitated group sessions, PEP-R provides input into refinement of patient ...

Patient involvement in clinical teaching.

This paper presents findings from a longitudinal study of patient refusals (as reported by graduating medical students) to take part in the teaching function of public hospitals. Results from a smaller study of non-patients' attitudes are also reported. Findings are discussed in terms of patients' rights, issues of personal privacy, medical education, and the public good.

Where is Patient Safety Research and Practice Heading? A Response to Recent Commentaries

How to optimise patient and public involvement in your research

This paper considers how best to achieve patient and public involvement in research and how to get the most out of it http://ow.ly/R0hwV.